High testosterone (and low ferritin)
I had my blood retested this week from February when it was first done. I was low in ferritin, B12, viamin D, zinc and high in copper at the time. My hormones were all normal and I was on the pill (Yasmin - which actually started the hair loss). So, now everything is good, except for ferritin which is still low (wow it takes a long time to get that up. I'm aiming for 70 which it needs to be to start hair growth, and it's at 39).
What has changed is my hormones. Now I'm off the pill the real reason is there in black and white on the page (says my doctor). I have high testosterone (not way high, but over what it should be and enough to cause hair loss). Damn it. It always seems to be hormonal eh. I did start to get acne coming off the pill too, so thats another symptom.
She thinks I have PCOS and now need to go off to have a rather lovely test that involves an internal ultrasound to check for cysts. Other than hair loss and monthly acne and irregular periods I don't have other PCOS symptoms. But maybe that's enough though, I don't know. My hair loss is general thinning overall not in a pattern which is common with PCOS. I don't have facial hair, body hair or middle weight gain and I'm not insulin dependant (she tested for that too).
Its possible that the Diane 35 I was taking hid the symptoms (hair loss and acne) and it wasn't till I swapped to Yasmin that it started.
She thinks that combined with low ferritin it has caused a TE. But TE isn't patterned like with PCOS - OMG it is SO confusing! Can testserone cause diffuse thinning?
So, my questions are;
- Does anyone else here have hair loss because of high testosterone and do they know what caused the level to go up?
- Can testosterone levels be high because of anything else other than ovaries (that's my main worry).
- When testosterone and androgens are blocked does the hair loss stop? Does that which has fallen out come back?
- Has spironalctone or BCPs helped anyone who has raised levels of testosterone? (as in decrease it and hair loss stop?)
So she's started me on spironlactone straight away, only starting at 25mg though then increasing. She also thought I should restart Diane 35 as this stops androgens with a high success rate (it was stopped here in NZ though because of blood clot risks, but she thinks it's ok). But starting BCPs again will mean high copper, and I'm just scared to have anything to do with BCPs at all now - they just seem evil to me now LOL.
So many questions, and so confused!
If anyone has any advice or info it'd be greatly appreciated! :-)