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About Me:
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I’ve spent about a week navigating the site and exchanging small talk with a few people and read tons of different blogs, comments and personal stories. I’m amazed by the stories of strength and hope and determination.
My story is really no story, as Alopecia has defined me my whole life: I’ve had it since I was 2 years old, I’m 39 now, and have been through various studies at the U, but to no avail. It’s actually quite exhausting and quite frankly, the subject of Alopecia Areata and the progression into Alopecia Universalis for me is rather frustrating, considering all the advancements the medical community has made in other areas; I mean, humans were conceived in laboratories 25 years ago, and these days, MEN ARE PREGNANT! One wouldn’t really think asking for ‘hair’ would be too much of a request, right?! Or is this my cynicism rearing its ugly head? (No pun intended!)
What is even worse in the medical community is the ignorance and the absolute heartless physicians that know nothing, or maybe have only heard of Alopecia in their medical studies; and may I add that some of these doctors are many years into their practice. In fact, I had a personal experience where a physician’s acts crossed a line and turned criminal. But as you may know, more often than not, we freeze-up & go into shock during those times we later call, “could have and should have moments”.
Whatever the case, I’m here hoping to share and learn; especially since the NAAF has absolutely nothing to offer except an envelop from time to time asking for more money. (That is my own personal experience with them; if you’ve had better luck, my apologies if that offends you!)
I’m not that strong, I-am-woman-hear-me-roar kind of gal; it seems that every time I’ve attempted to be her, someone somewhere stands-up taller, with her long flowing luxurious blowing-in-the-wind REAL hair; particularly those very irritating, Pantene Pro-V commercials, reminding me I am not whole and to sit down.
So, yes, I'd say I am consumed by Alopecia.
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